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Impacts of Food Hypersensitivities on Quality of Life in the UK and Willingness to Pay (WTP) to remove those impacts

Willingness to pay report: References

List of references for the Impacts of Food Hypersensitivities on Quality of Life in the UK and Willingness to Pay (WTP) to remove those impacts report by the University of Manchester.

Last updated: 15 December 2022
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Last updated: 15 December 2022
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  • Broadbent E Petrie KJ Main J Weinman J . The Brief Illness Perception Questionnaire . J Psychosom Res 2006 ; 60 : 631 – 637 .
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  • Chrzan and Patterson (2006) Chrzan, Keith and Michael Patterson (2006), “Testing for the Optimal Number of Attributes in MaxDiff Questions,” 2006 Sawtooth Software Conference Proceedings, Sequim, WA.
  • Cohen, Steve (2003), “Maximum Difference Scaling: Improved Measures of Importance and Preference for Segmentation,” 2003 Sawtooth Software Conference Proceedings, Sequim, WA.
  • Cohen, Steve and Bryan Orme (2004), “What's Your Preference?” Marketing Research, 16 (Summer 2004), 32-37.
  • Devlin NJ, Shah KK, Feng Y, Mulhern B, van Hout B. Valuing health-related quality of life: An EQ-5D-5L value set for England. Health Econ. 2018 Jan;27(1):7-22. doi: 10.1002/hec.3564. Epub 2017 Aug 22. PMID: 28833869; PMCID: PMC6680214.
  • Dorn, S.D., Hernandez, L., Minayas, C.B. et al. (2010).  The development and validation of a new coeliac disease quality of life survey (CD-QOL).  Alimentary Pharmacology and Therapeutics, 31, 666-675.
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  • DunnGalvin, A., Barnett, J., Begen, F.M., Ryan, K., Lucas J. (2018). Development and preliminary validation of the food intolerance quality of life questionnaire (FIQLQ): adult form. Quality of Life Research, 27, 1109-1116.
  • DunnGalvin, A., Cullinane, C.D., Flokstra-de Blok, B.M.J., Dubois, A.E.J., Hourihane, J.O’B. (2010). Longitudinal validity and responsiveness of the Food Allergy Quality of Life Questionnaire – Parent Form (FAQLQ-PF) in children 0-12 years following positive and negative food challenges.  Clinical and Experimental Allergy, 40, 476-85.
  • DunnGalvin, A., de Blok, B.M.J., Dubois, A., Hourihane, J.O’B. (2008).  Development and validation of the Food Allergy Quality of Life – Parent Administered Questionnaire (FAQLQ-PF) for food allergic children aged 0-12 years. Clinical and Experimental Allergy, 38, 977-986.
  • EQ-5D-5L | About
  • Feng, Y., Devlin, N. & Herdman, M. Assessing the health of the general population in England: how do the three- and five-level versions of EQ-5D compare?. Health Qual Life Outcomes 13, 171 (2015). https://doi.org/10.1186/s12955-015-0356-8
  • Flokstra de-Blok, B.M., DunnGalvin, A., Vlieg-Boerstra, B.J., et al. (2009).  Development and validation of the self-administered Food Allergy Quality of Life Questionnaire for adolsecents.  Journal of Allergy and Clinical Immunology, 122, 139-44.
  • Hernández Alava M, Wailoo AJ, Ara R. Tails from the peak district: adjusted limited dependent variable mixture models of EQ-5D questionnaire health state utility values. Value Health. 2012 May;15(3):550-61. doi: 10.1016/j.jval.2011.12.014.  
  • Hernandez-Alava, M., Pudney, S., Wailoo, A. (2018).  Quality review of a proposed EQ-5D-5L value set for England.  Policy Research Unit in Economic Evaluation of Health and Care Interventions.  Universities of Sheffield and York.  EEPRU Research Report 060.
  • Jansson, SA., Heibert-Arnlind, M., Middelveld, R.J. et al (2013). Health-related quality of life, assessed with a disease-specific questionnaire, in Swedish adults suffering from well-diagnosed food allergy to staple foods. Clin Transl Allergy 3, 21. https://doi.org/10.1186/2045-7022-3-21
  • Ludvigsson JF, Bai JC, Biagi F, et al.  (2014). Diagnosis and management of adult coeliac disease: guidelines from the British Society of Gastroenterology. Gut, 63, 1210-1228
  • Lins, MT.C., Tassitano, R.M., Brandt, K.G., et al (2015).  Translation, cultural adaptation and validation of the celiac disease DUX (CDDUX).  Jornal de Pediatria, 9, 448-454.
  • Louviere, J. J. (1993), “The Best-Worst or Maximum Difference Measurement Model: Applications to Behavioral Research in Marketing,” The American Marketing Association's 1993 Behavioral Research Conference, Phoenix, Arizona.
  • NICE Position statement on use of the EQ-5D-5L value set for England (updated October 2019)
  • Paez MA, Gramelspacher AM, Sinacore J et al (2017). Delay in Diagnosis of Celiac Disease in Patients Without Gastrointestinal Complaints. Am J Med, 130, 1318-1323
  • Sawtooth Software (2020) TECHNICAL PAPER SERIES The MaxDiff System Technical Paper Version 9.
  • Singh P, Arora A, Strand TA, Leffler DA, Catassi C, Green PH, Kelly CP, Ahuja V, Makharia GK. (2018). Global Prevalence of Celiac Disease: Systematic Review and Meta-analysis. Clin Gastroenterol Hepatol. 2018.
  • Szende A, Janssen B, Cabases J (2014). Self-Reported Population Health: An International Perspective based on EQ-5D. Springer. 
  • Train, K. (2009). Discrete Choice Methods with Simulation. Cambridge: Cambridge University Press. 
  • Van Doorn, R.K., Winkler, L.M.F., Zwinderman, K.H. et al (2008).  CDDUX: A Disease-specific Health-related Quality-of-life Questionnaire for Children with Celiac Disease.  Journal of Pediatric Gastroenterology and Nutrition, 47, 147-152.
  • Zipser RD, Patel S, Yahya KZ et al. (2003). Presentations of adult celiac disease in a nationwide patient support group. Dig Dis Sci, 48(4),761-4.
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